Today, they are on the critical list with The Livestock Conservancy ... and endangered by the U.K.’s Rare Breeds Survival Trust, which puts their numbers at just three to 500 in their native land. The ...
Some 30 million Americans with rare diseases are waiting not only for medications that don't yet exist, but also for tests that show existing medications can also help them. Lawmakers need to get ...
A “healthy” boy suffering from tiredness and bruises has been diagnosed with a rare, life-threatening blood condition and now faces a bone marrow transplant and six weeks of isolation.
The research found that where patient groups exist, they are usually 'kitchen-table' organisations, set up by people living with rare conditions or who have a family member affected.
The 50-year-old has been diagnosed with a rare sleep disorder that causes her to initiate sex while asleep. Her husband Charlie, 52, says that while Lauren is asleep she will snuggle up to him or ...
Central to Upsher-Smith’s commitment to rare disease communities is its Promise of Support™ Program ... Your provider should tell you when to start taking TORPENZ again after surgery. Increased blood ...