In a powerful move for rare disease awareness ... Sanad Launches Saudi Childhood Cancer Awareness Month Often called ...

Research into new bandaging aims to ease the agony experienced by those living with genetic skin condition Epidermolysis Bullosa (EB), commonly referred to as 'butterfly skin'.

It’s estimated that about half a million people around the world are affected by a rare skin disease called epidermolysis bullosa (EB), better known as ‘butterfly skin’, that causes skin to ...

Pink, Courteney Cox, Kaley Cuoco, Brad Pitt, Judd Apatow and more stars supported the fundraiser for epidermolysis bullosa ...

a charity supporting people with the skin disease Epidermolysis bullosa (EB), also known as butterfly skin. The relay team is reforming - this time to swim the Channel in both directions ...

"This disease... it's the cruellest ... treatments that could improve the quality of life for people with butterfly skin. Andy described epidermolysis as a "brutal" condition.